Thursday, 19 January 2012

An update would be nice

Yesterday I found out my baby boy needs to have a shunt put in to drain the excess fluids on his brain. As you can imagine, this came as quite a shock to me as he hasn't yet shown any signs or symptoms of pressure. I am sad and relieved all at once. Sad that my poor little baby has to go through such an ordeal, but relieved that it did not have to happen sooner when he was much more fragile. I am also incredibly grateful that it was caught soon enough that no apparent damage was done, that we live in a world where this can be done, and that the staff at the hospital are treating this with great compassion and care. Nonetheless, I feel a mix of emotions and I know there are risks with every surgery, but not having the surgery would be even riskier. Mama says, when we're worried or distressed about something, just thank God for all the good and positive things.

Things could have been much worse. For twins born at 28 weeks they are doing amazingly well. We don't have to deal with constant surgeries or a whole lot of uncertainties. Their hearts work, they weren't sent home on oxygen, they eat well, they're ahead of where they should be developmentally, and they're just so perfect.

While we waited to see the doctors at the Emergency Room yesterday, we had the privilege of talking to another woman who had boy/girl twins who were eight years old. Her son suffered from Hydrocephalus but they did not catch it in time-they realized at that point that her son had developed autism. But I will not forget the optimism that woman had-her children were nothing but perfect to her, and she was full of hope. So I look at this and realize that we will get through anything that these babies throw at us and they're still perfect.

One last thing, hallelujah for public health care! We would be so in debt without it...

3 comments:

  1. Being a Momma can be tough, with all the heartache of watching your babies go through pain and suffering. Like Mama says, focus on the good things.
    When the boys are feeling down, or anxious, I tell them to picture all the babies (Edie, Toby and Lotte) all rolling around the same crib, like chubby little Jelly beans!
    We're praying for Mr. Tobes.
    I'm picturing his flirty, chubby little face right now, I wanna kiss him!

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  2. Big hugs to you... I can't imagine what you guys are going through. My Mom and I prayed for you and your babies last night. :)

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